I have two children with cystic fibrosis, is Pretty 2020 The Year I Turned Eighteen And Was Quarantined Shirt there any additional information you were given with regard to cf and Covid-19 other than quarantine? Discoloration in fingers and toes that are clubbed. That was the only odd one, that stood out. Like yellowing or darkening in the cuticles of clubbed digits. Outside of that, cf and COVID have the same damn symptoms. So it’s been rinse repeat of the same info we know by heart. “Different cough than usual” etc. Oh, and this is just from my experience, diet. I’ve had to change how I measure my creon. My metabolism is stagnant, due to not being active. So I find myself needing more Creon, or I feel very unwell.
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Considering Covid-19 seems to be primarily a respiratory illness, I suppose this is Pretty 2020 The Year I Turned Eighteen And Was Quarantined Shirt one of those rare instances where we get to say that it’s a good thing it’s not a lung problem instead. Interesting, Ivacaftor and the combination ivacaftor/lumacaftor (Orkambi) are cell level treatments rather than lung-specific treatment, so they should work on all regions where your funky chloride channels mess with you, not just your lungs. Ivacaftor increases your chloride channel activity and lumacaftor bends F508 CTFR into a shape where it works. It’s really the mutations you have that affect how well they work.
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I’ve been wondering how the CF community was coping with the Covid-19 outbreak! My mom had it (she made it to 53! Passed in 2006) and knowing what she would go through on a Pretty 2020 The Year I Turned Eighteen And Was Quarantined Shirt daily basis, I couldn’t even imagine how awful it would be if someone with CF got this virus. Wow, that’s really interesting. Your Creon requirement increased during this quarantine. That makes sense but it’s something I didn’t think about for someone with CF during a pandemic. I hope you’re doing well!